There are around 2.2 million children and young people in Germany living with a severely chronically ill or disabled sibling. Not all of them emerge stronger from such a situation.
This is because the healthy siblings are at increased risk of suffering from psychological problems associated with adjusting to their situation, from isolation, anxiety or depression together with increased problems in the family, at school and in their leisure time.
In collaboration with academic partners*, FamilienBande has developed the „LARES Geschwisterkinder“ (LARES Siblings) questionnaire with the aim of identifying those siblings that are suffering from the situation, as early as possible. The questionnaire has been validated in a national study.
You are the trusted person for working with affected families in your institution/medical office and play a central role. That’s why we’re giving you the „LARES Geschwisterkinder“ tool. The questionnaires for children and parents will help you and these families assess their situation and provide them with assistance based on their needs. Thanks for taking the time to complete the survey!
The questionnaire and instructions are available on the following pages. You can use the print version or the interactive online version, which helps in the evaluation. In addition you can participate in an online training course that details the use of LARES. Themed “Together for siblings” we would like to invite you: LARES refers to supports and services for families. But at the present time we have certainly not yet discovered all. Have you beyond recommendations? Then we look forward to feedback to firstname.lastname@example.org. From your inclusion on the website www.stiftung-familienbande.de others can also benefit.
Thank you very much for your support - Together for siblings!
Herlinde Schneider, Foundation Board
* IGV Bochum (Institute for Health Promotion and Health Services Research) and ISPA (Institute for Social Medicine in Pediatrics)